Saturday, May 25, 2013

Santa Lucia

Most of my conversations revolve around my children... and it's almost always on here that I talk about my SN daughters.  I always figured that's what I needed to talk about.  For me, for my friends in need and for those who need a little self-check.

I want to tell you about one of our biggest challenges.  "Normie" siblings.  It's just as big as a topic as the non-typically developing siblings.

Think about it.  The responsibility is on our shoulders.  For now. Who steps in later in life when Mom and Dad aren't here or in need themselves? When does that shift begin?

I'll tell you when it begins.  For us - it was the moment they lifted a full term, 8lb baby in the air, covered in goo and she opened her eyes and cried.

We named her "Light" or Lucia.  She was the only thing that was shining so brightly for us in such a dark time.  And she did just that.  Our lives were filled with such overwhelming relief that she was not sick or challenged.  In fact, she was quite extraordinary in every facet that we were previously challenged with the others.  She made us realize how HARD the others were working and that gave us a new perspective on how resilient and strong and determined the others were.

Remember my first three daughters were born in a 25 month span.  I don't think I've realized how incredible it is until I imagine my now 2 year old as an "older sister."  We must have been nuts.  They were all developing within months of the same milestones. It wasn't until they were a bit older that we realized our Lucia would soon reach most of them first.

She never rubs it in.  She never leaves anyone out.  She pushes her sisters to try things they are hesitant about by simply just doing them.  Sibling rivalry is quite the persuasive beast that Mom and Dad cannot replicate. 

When Gianna cut her hair for locks of love, it was Lucia who sat next to her in the salon.  It was Lucia's smile as she put her arm around her sister beaming with pride that made that moment extra special for me.  When Adelina goes to the hospital, it's Lucia who always goes along for support.  I never have to sit alone in the waiting room and Adelina has someone to jump up and down with in the elevators with (her own age hee-hee).  She knows where to park, what floor crosses over to the main hospital, where the good cookies are and what NOT to say to other parents and children.  She "primes" the milk pump for me at night so I can get the baby to bed.  And if I need a few moments, she more than willingly plays with the her too - sometimes even stealing some nail polish and painting her nails.  But it's those moments that tell me to get the camera instead of losing my temper.

When I'm about to blow a lid during tutoring sessions, I can quietly ask her if she understands and then ask her to show me how I can make it work better.  She makes me feel like a "normie" parent... the kind that doesn't have to check to make sure they are walking down the stairs one foot on each step or chewing without their hands in their mouth.  She rode a bike at 3, she rides horses with girls 2 years older.  She does these amazing things now, because she doesn't want to be left out.  But time will show that it's because she actually doesn't want them to be alone.  I'm raising a most compassionate and fun little girl and she owes these traits just as much to the sisters who may some day need her in a different way.  I'm confident she will make good choices, because she already does without realizing it.


I always talk about how resilient my kids are, but I really do mean ALL of them.  Thank you Lucia.  This little light of mine - I'm going to let it shine.  And she's bright as the sun.... and as this picture shows - superheroes can come in princess pj's and underwear masks and sometimes they haven't even started Kindergarten yet.



 

Sunday, May 12, 2013

Holding Out For A Hero

It's Mother's Day Weekend ... so much planning on the way.  Or not.  This year, Mother's Day gave me a gift a day early.  As much as I did not feel like dragging out my crew on this dreary weathered morning for dance recital pre-photos, I knew that a pit in my stomach would turn sour if I didn't.

We've been waiting for years to be able to fully participate in dance classes.  This little girl has been pointing since I can remember, but never able to make it thru a class from the sensory issues.  This was her year and although there was a rocky start and a lot of tears, we're still here.  She's battled noise and mirrors and self-regulated like a champ.  There were days when she wasn't feeling well in general and that hour of rehearsal put her back together like I could never do for her.

So, I took her up to my room this morning and twisted up her fancy bun as she looked at herself in my oversized mirror.  And although I'm totally weirded out by kids in makeup, I gave her some cheeks, some lashes and a bit of lips.  She put on her leotard and tu-tu and as she tucked the laces into her slippers, I found myself beaming with pride.  Just yesterday she checked out of Children's Hospital of Philadelphia for a feeding tube change and a quick weigh-in.  Today she's just another beautiful little girl admiring herself in the mirror in a dance recital costume.





That's my gift this year.  That smile.  The smile that says, "I'm proud of myself." What more could a mother want to give a daughter, but confidence and self admiration.  Knowing that you're not perfect, but you're wonderful in the same breath.

My kids have given me a chance to appreciate the little things in a new light and my own childhood has given me the chance to seize opportunities that were never taken.  I'm grateful for both.  Being a mother is not an easy job, but sucking it up and giving it all you have is a recipe for a good life.  No regrets on things that you can foresee and making up for the things that you couldn't with love.

Happy Mother's Day to all the mothers out there, the ones who would give anything for a stretch mark, anyone missing their mother or wishing their situation was different...  and for the kids who's mother's have wings.  We are all blessed in different ways.  Find your blessing and take it somewhere great.

Sometimes you just have to slow down and look for it.